Welcome to the
North West Somerset Parkinson's Support Group website


About us:                    


The North West Somerset Support group was set up in 1994 to help those living with Parkinson's and those caring for them in Nailsea, Backwell, Clevedon, Portishead, Yatton and the surrounding areas.  Membership is free to all.


We are part of Parkinson's UK (parkinsons.org.uk), the national Parkinson's support and research charity.


Monthly General Meetings are usually held on the second Saturday of each month from 10.30am to 12.15pm.   These are social gatherings, often with a speaker on a subject of interest or curiosity to be enjoyed by those living with Parkinson's, those who are caring for them, their families and friends.  Tea and coffee and biscuits are served! 


We hold Singalong sessions twice a month to help with loss of voice or with speech problems due to Parkinson's.  


We publish a newsletter with information and news - this is available to all members. Free information leaflets about Parkinson's are available at our Saturday meetings and on request.


For more information about our local group, please call Marie on 01934 742091 or 07800 815262


See below for monthly meetings, Singalong, announcements, other information and useful contacts. Please also check nearer the date as some dates may be subject to change.


Navigating this website:  e.g. get your taxi paid for ! See our transport scheme - click on the page menu at the top:  Home, Ability Net, Transport Scheme, Privacy Notice. On a computer you may need to maximise the current window to get the page menu, on a smartphone you will need to click on the little three lines button at the top left  to get the page menu. 


Meetings

Unless stated otherwise, meetings are held at St Francis Church Hall, Little Meadow End, Ash Hayes Road, Nailsea, BS48 2LP


General Meetings
These are normally held on the second Saturday of the month. We look forward to seeing you soon.



Saturday 10th May
10.30 am - 12.15 pm:

Michael Abolins - CWGC Talk on landscape, trees etc.


Saturday 14th June
10.30 am - 12.15 pm:

Caroline Craig Parkinson's UK Local Adviser.


Sunday 15th June

Nailsea & Backwell Rotary Walk, from Scotch Horn Leisure Centre, Nailsea


Singalongs
Sing along to popular songs and old-time favourites led by Chris and Jan, our keyboard maestros. Helps preserve your voice. No skill required!

These are at 2.30 pm - 4.00 pm They are normally held  on the  second  and fourth  Tuesdays of the month. The next ones are:

Tuesday 22nd April

Tuesday 13th May

Tuesday 27th May

Tuesday 10th June


Parkinson's Walking Football

Open day - all welcome

2nd May 10:00 - 13:00

Portishead Town Football Club,

Bristol Rd, BS20 6QG

FinalVersion2Poster020525Event.pdf

Click on the picture above for full size.

To  sign up for the walking football event you can just Click on this link

if it does not work for you, just turn up anyway (if you like you can email htaylor-feld@parkinsons.org.uk and Heidi will take the booking.)


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People Like Me Do!   Invitation to a super special event.

 11th May, 11am - 3pm. West Backwell Bowling Club, West Town Road, Backwell BS48 3HQ

I’m writing to you from a bowling club based locally to you in Backwell and I would love to invite you to our launch event on 11 May ‘People like me Do!' when we are hosting members of the Bowlers with disabilities England Squad including World Champions and Commonwealth Games medalists.  We will also have coaches, umpires, directors and members of Bowls England who are all there to play, demonstrate that everyone can enjoy bowls no matter their ability and answer any questions.  The programme for the day which starts at 11am and your Invitation are attached. I hope you will be able to join us for what will be a fun and educational few hours - the first of its kind! 

 

See details of People Like Me Do! via the menu at the top left  of this screen. You will need to click on the little three lined button at the top left  to get the page menu.




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Are you living with a long term condition such as Parkinsons?

 

Do you want to enhance your resilience, rediscover strengths and increase your ability to cope?

Hope For The Community CIC have partnered with NHS South West to run self-management programmes for people living with a range of conditions to support and improve wellbeing. The Programme was co-created with people living with a long term condition, healthcare professionals and researchers at Coventry University to make sure it is rooted in science. 

See details of the programme via the menu at the top left  of this screen. You will need to click on the little three lined button at the top left  to get the page menu.

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EXERCISE GROUPS:

Disclaimer:  The NW Somerset Support Group only funds the supervision provided in the POWER joint supervisory sessions below. All the groups below are run totally independently of Parkinson’s UK and of the NW Somerset Support Group of Parkinson’s UK.

LOCAL EXERCISE GROUPS:

The NW Somerset Support Group only funds the supervision provided in the POWER joint supervisory sessions below. All the groups below are run totally independently of Parkinson’s UK and of the NW Somerset Support Group of Parkinson’s UK.

Exercise helps people with Parkinson's manage their symptoms.

THURSDAY Exercise group, under £5 per session:
A Parkinson’s exercise group open to all. Run by physiotherapist Amanda Burroughs at the Scotch Horn Leisure Centre, Nailsea. For information or for Amanda to ring you back, call the Scotch Horn, on 01275 856 965.

POWER “Warrior” Parkinson's Exercise Groups: £20 per 2 months

Backwell:Tremeloes: Mondays 10-12 Cuppa at 11

Portishead: Mondays 10.00 -11.45 Strictly PD  &  12.00 - 1.45 Walnut Whips

Tickenham: Parkin' Lot: Mondays  10-12

Yatton: Warriors: Mondays 10-12 Cuppa at 12

Clevedon, Strode road: tbc

Joint Supervisory Sessions for the POWER group are held at 12.30 - 2.30 at Scotch Horn Leisure Centre, Nailsea, usually on the 1st and 3rd Wednesdays of the month.

For further info about the POWER exercise groups contact stephenfischer1@googlemail.com
To join one of the POWER groups first contact Rowan 07518964332 or Amanda 07917116154

WEDNESDAYS Parkinson's Exercise group,
Wednesday 10am, Parish Wharf Leisure Centre. £7 per session

Contact Alistair on 07825 033741

pdfitnessbristol@gmail.com

Parkinson’s UK North West Somerset Branch became Parkinson’s UK NW Somerset Support Group on 1st September 2022. The group is run entirely by volunteers and  we are nevertheless keenly seeking more volunteers. We need volunteers for various roles including for becoming a future coordinator to relieve Marie. Please do get in touch with Marie, or one of the other Support-Group contacts listed below if you can volunteer in any way.

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Please contact Vicki e.g. on vbworldwide@gmail.com or Robert on puknwsmem@gmail.com with any changes to this website that are needed.


SPECIALIST ADVICE

Parkinson's UK has a specialist adviser team who can provide information about any aspect of living with Parkinson's, managing symptoms, medication, social care, employment rights, benefits and much more. They can offer emotional support and liaise with health, social care and other local professionals to get you the support you need.

 

Call the Helpline on 0808 800 0303 or email hello@parkinsons.org.uk, the Helpline Advisers will deal with any general enquiries and you will be put in touch with someone in your area if more local knowledge or in depth support is needed. Our particular Local Adviser is Caroline Craig, she is contactable via  ccraig@parkinsons.org.uk Her number is 02079 633696. Advisers work mostly on the telephone but do some face to face work and visits as well.


If you haven't already, we would love you to properly join Parkinson's  UK and our local  support group . 

To do that, please email our membership secretary on:  puknwsmem@gmail.com  for joining instructions.


 Newsletter 

If you would like to have a look at past copies of our Newsletter,  click on the links below* or email the membership secretary Robert on puknwsmem@gmail.com  and he will email them to you. 

June/July2023       Aug/Sept2023         Oct/Nov2023  Dec2023/Jan2024       Feb/March 2024      April/May 2024    June/July2024     Aug/Sept2024    Oct/Nov2024    Dec2024/Jan 2025  Feb/March2025          April/May 2025 

*then click on menu/Download if necessary to get full view.


Useful North West Somerset Support-Group Committee Contacts:

Coordinator: Marie PEARSON 01934 742091 - 07800 815262  puknwscord@gmail.com

Newsletter: Kevin YOUDE  01934 824400 - 07855 936762 Kevin.youde@gmail.com

Treasurer & IT - Neil Turp  07422 965598   neilturp@gmail.com

Fundraising: Wendy GIBB 01275 394124 prwgibb@mypostoffice.co.uk

Social / Events Secretary: VACANT

Committee member: Richard (Rich) JENKINS 01275 394989 - 07854147895 richbj2@gmail.com

Secretary: Vicki BREWER  vbworldwide@gmail.com

Committee member:  Don BREWER  dvbrewerworld@yahoo.co.uk

Membership Secretary: Robert BROWN - 07751 606670 - 01275 603146 (No messages)   puknwsmem@gmail.com

Parkinsons UK Network Support Officer    Claire DENBY  07842445020 / 02079633731   cdenby@parkinsons.org.uk 


OTHER USEFUL CONTACTS:

Singalong (NWSomerset) - Pat and Belinda Kington 07779819513, kingtonfamily@btopenworld.com

Parkinson's UK Specialist advice - see above - Caroline Craig etc.

Local NHS Parkinson’s specialist practitioner (Sirona):  Mel FALK  0300 125 5550 Sirona.parkinsons@nhs.net

Local NHS Parkinson’s Specialist practitioner (Sirona): Emily MORRISON 0300 125 5550 Sirona.parkinsons@nhs.net

Parkinson’s UK:-     0808 800 0303 parkinsons.org.uk

Parkinson's UK National membership issues:- see parkinsons.org.uk  > Supporter Enquiries

Parkinson's UK Facebook:-      en-gb.facebook.com/parkinsonsuk/ 

Parkinson's UK Twitter:-           twitter.com/ParkinsonsUK 


Privacy notice:  See page on menu at the top.

Parkinson’s UK is the operating name of the Parkinson’s Disease Society of the United Kingdom. A company limited by guarantee. Registered in England and Wales (00948776). Registered office: Parkinson's UK, 50 Broadway, London SW1H 0DB . A charity registered in England and Wales (258197) and in Scotland (SC037554).