See local privacy notice below, and the general national privacy policy at  Privacy  on the national website.

Local Privacy Notice

We are committed to protecting and respecting your privacy. For any personal data you provide for the purposes of your membership, Parkinson’s UK is the ‘data controller’ and is responsible for storing and otherwise processing that data in a fair, lawful, secure and transparent way. A fuller version of this Privacy Notice is available on the Parkinson’s UK website.

You can contact the data protection officer at or in writing at Parkinson’s UK, 215 Vauxhall Bridge Rd, Pimlico, London SW1V 1EJ.

You can also raise any concerns with the Information Commissioner’s Office, contact details for which are at

What personal data we hold on you

You may give us information about yourself by filling in membership forms at an event or online, or by corresponding with us by phone, email or otherwise. This includes information you provide when you register with the local group and subscribe to our newsletter. The information you give us may include your name, address, email address and phone number.

Why we need your personal data

The reason we need your data is to be able to provide the membership services you are signing up to when you register with the local group. Our lawful basis for processing this data is that it is in the legitimate interests of the local group and its members. We will use the data only in the ways you would expect – to run the group and support its aims.

Our lawful basis for sending you marketing by electronic means is your consent.

Reasons we need to process your data include:

For membership and management  

 Marketing and communications (where separate consent is provided)

On occasion, we may collect personal data from non-members (eg any non-member participant who fills in a health disclaimer or carer). Our lawful basis for processing data is consent. We will ask for consent at the point of collecting it.

Where we have social media pages, all members are free to join these pages. If you join one of the Social Media pages, please note that provider of the social media platform(s) have their own privacy policies and the local group does not accept any responsibility or liability for these policies. Please check these policies before you submit any personal data on the social media pages.

Who we share your personal data with

We may need to supply your personal data as part of event administration. There are formal contracts in place that ensure this processing is compliant. Where the local group does transfer your personal data overseas, it is with the appropriate safeguards in place to ensure the security of that personal data.

How long we hold your personal data

We will hold your personal data on file for as long as you are a member with us. Any personal data we hold on you will be securely destroyed after one year of inactivity on that member’s account, in line with Parkinson’s UK retention policy. Your data is not processed for any further purposes other than those detailed in this policy.

Your rights regarding your personal data

As a ‘data subject’, you may have the right – at any time: